Simplified clinical trials results to inform patients – Our response to the EC consultation
In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons.
This consultation...
New treatment to reduce asthma severity – Promising AirPROM study
The University of Leicester has led a ground-breaking study, funded by Novartis Pharmaceuticals, National Institute for Health Research (NIHR) and EU-funded...
AirPROM legacy – Check out the booklet
The AirPROM project ended in May 2016, with a public event organised by EFA at the European Parliament, hosted by MEP David Borrelli. However the work...
75th anniversary of the Finnish Organisation for Respiratory Health - Congratulations!
EFA's Member the Organisation for Respiratory Health in Finland, representing patients, celebrated its’ 75th anniversary in August. The event was celebrated...
Allergy prevention and control campaign in Bulgaria
EFA Member the Association of the Bulgarians suffering from Bronchial Asthma, Allergies and COPD (ABBA) has launched a joint awareness campaign for Allergy...
Severe food allergy campaign in France
EFA’s Member the French Association for the Prevention of Allergies has launched a new campaign to raise awareness about the severity of food allergy....
FENAER organises first respiratory patients congress in Madrid
EFA Member the Spanish Federation of Respiratory Diseases’ Associations (FENAER) is organising the first ever respiratory patients symposium in...
Chronic diseases in Europe: the Commission is urged to act
EFA, the European Chronic Diseases Alliance (ECDA) and other public health organisations have sent an open letter to the European Commission urging them...
The European Commission advances on “may contain” allergen labelling
EFA brought to a European Commission workshop on precautionary labelling the patients perspective to abolish “may contain” mentions. With 17 million...
European Medicines Agency celebrates 10 years of collaboration with patients
Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially...
EFA President moderates debate on care and research at EAACI Congress
On the 13th of June, EFA President Mikaela Odemyr co-moderated a debate at a high-level policy meeting on the challenges and opportunities the European...
European Patient Charter presented
In the framework of the Patient Empowerment campaign, the European Patients’ Forum (EPF) has launched the European Patient Charter and a Roadmap for...
EU conclusions to make more balanced pharmaceutical systems
On the 17th of June, the Council of the European Union issued conclusions on strengthening the balance in the pharmaceutical systems in the EU and its...
EFA statement on value and pricing of innovative medicines
EFA shares the European Patients’ Forum (EPF) view that health is a fundamental right for everyone and therefore medicines, which allow for this right...
Treat the person, not the disease – Outcomes of the Personalised Medicine Conference
Personalised medicine is seen as part of a wider shift from disease-centred to person-centred healthcare, from one-size-fits-all, to individualized treatment...
EFA calls for more and better public funding for patients groups
On the 30th of June, the Committee on Budget of the European Parliament voted an own-initiative report on public funding for non-profit organisations....
How to invest on health to improve patient access to care?
With 18 million patients declaring unmet needs on healthcare access (3.6% of the EU population), the European Commission Expert Panel on Effective Ways...
European Commission warns about health impact of e-cigarettes
Tobacco remains the most significant cause of premature death in the EU, responsible for almost 700,000 deaths every year. The EU Tobacco Products Directive...
European Parliament fights illicit trade of tobacco products
In the EU, tobacco continues to be the most significant cause of premature deaths responsible for nearly 700,000 deaths every year. One week after the...
New air quality legislation approved in Europe
A deal on the National Emissions Ceilings (NEC) Directive has been reached under the Dutch Presidency of the European Union between the Parliament, the...